From November 2021 the members of the Steering Group are:
Austria:
Eva Amerstorfer , pediatric surgeon (co-chair), Graz
Germany:
Nicole Schwarzer , patient organisation (secretary)
Ekkehart Jenetzky , medical doctor, epidemiologist, Mainz and Witten
Israel:
Inbal Samuk , pediatric surgeon, Petach Tikva
Italy:
Anna Morandi , pediatric surgeon (chair), Milan
Dalia Aminoff , patient organisation (secretary)
Netherlands:
Michel Haanen , patient organisation
Iris van Rooij , epidemiologist, Nijmegen
Pim Sloots , pediatric surgeon, Rotterdam
Herjan van der Steeg , pediatric surgeon Nijmegen
Spain:
Maria Fanjul , pediatric surgeon, Madrid
Sweden:
Pernilla Stenström , pediatric surgeon, Lund
Other full members:
Austria:
Stefan Deluggi and Johanna Ludwiczek , pediatric surgeon, Linz
Holger Till , pediatric surgeons, Graz
Mazeena Mohideen , patient organisation
Wilfried Krois , pediatric surgeon, Vienna
Belgium:
Marc Miserez , pediatric surgeon, Leuven
Germany:
Eberhard Schmiedeke , pediatric surgeon, Bremen
Heiko Reutter , medical doctor, geneticist, Bonn
Martin Lacher and Jan Goseman, pediatric surgeon, Leipzig
Stephan Rohleder , pediatric surgeon, Mainz
Patrick Volk , pediatric surgeon, Heidelberg
Italy:
Paola Midrio , pediatric surgeon, Treviso
Pietro Bagolan and Barbara Iacobelli , pediatric surgeon, Rome
Caterina Grano , psychologist, Rome
Francesco Fascetti-Leon , pediatric surgeons, Padua
Ernesto Leva , pediatric surgeon, Milan
Gabriele Lisi , pediatric surgeon, Pescara
Alessio Piniprato , pediatric surgeon, Alessandria
Netherlands:
Ivo de Blaauw , pediatric surgeon, Nijmegen
Carlo Marcelis , clinical geneticist, Nijmegen
Ramon Gorter , pediatric surgeon, Amsterdam
Chris Verhaak , psychologist, Nijmegen
Marieke Witvliet , pediatric surgeon, Utrecht
Spain:
Araceli García Vázquez , pediatric surgeon, Madrid
Carlos Giné , pediatric surgeon, Barcelona
Alejandra Vilanova-Sánchez , pediatric surgeon, Madrid
Ukraine:
Igor Makedonsky , pediatric surgeon, Dnepropetrovsk
Turkey:
Hakan Çavuşoğlu , pediatric surgeon, Ankara
Emre Divarci , pediatric surgeon, Izmir
Associated members
Germany – Nagoud Schukfeh , pediatric surgeon, Hannover
Germany – Judith Lindert , pediatric surgeon, Rostock
Germany – Judith Felcht , pediatric surgeon, Mannheim
Germany – Sabine Grasshoff-Derr , pediatric surgeon, Frankfurt am Main
Czech Republic – Lucie Pos , pediatric surgeon, Prague
Austria – Carlos Reck , pediatric surgeon, Vienna
Netherlands – Paul Broens, pediatric surgeon, Groningen
Switzerland – Stefan Holland-Cunz , pediatric surgeon, Basel
Patient organizations
AIMAR (Italy)
SOMA (Germany)
Vereniging Anusatresie (The Netherlands)
SOMA (Austria)